Mission and Vision

Mission: Building a common European “digital blood service” for rare disease research

The mission of ERDR is to make altruistic data donating as patient-driven, easy and safe, as your unique and irreplaceable “digital blood donation” to be studied for a better future life for all.

Vision: Bring AI to Rare

The long-term vision of ERDR is to democratise and populate the playing field of rare diseases with fit-for-purpose basic datasets for ML/AI so that all volunteering PLwRDs may live not only with faint hope but can concretely and repeatedly advance the international research effort with their unique and irreplaceable contribution.